4 years and counting... | Gratefulness

in #life5 years ago

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4 years ago today, we brought our CDH son home. 4 years ago today, I could not even think of how our future would be like. 4 years ago today, I was fearful of death, paranoid of many things. Fear had gripped my soul. But not so anymore.

Looking back, I had learned so much being a CDH mom and tubie mom. Being grateful of life and never take for granted any moment, any second, any minute is the greatest lesson which supercedes all the challenges in the world. Challenges is inevitable. But how we look at them determine how are we going to chart the future.

I could be fearful of germs, knowing that certain virus would cause him his life and we hid forever at home. But I could choose to be fearless, and made do with what I had and let my son lived as normal life as possible. We practised absolute hygiene. We avoided crowded malls. We tried going out on less peak hour. So on and so forth.

Challenges and obstacles only mean one thing - we have set our bar higher and we emerge stronger after that.

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I learn one thing from my son. To live life to the fullest. Fearless. I know this all along but I see him doing it everyday. It is so natural of him to want to live every single second meaningful. He doesn't see himself as frail. He sees himself as Power Rangers. He sees himself as Spiderman who is joyful always. That was what he told me.

He endures pain and then he goes about jumping again. As if the pain never existed. He went through fear (fear of doctors and needles and tubes) but he continues enjoying his life with no fear paralysing him. I grow with him and I break free from the chain of fear. Because no matter how I am so scared of him dying, that is not going to change any circumstances, so why not ask fear to lose its grip on me and I live my life happy, bold and positive. That is better. No more suffocating from fear.

No matter what challenges you face today, know that it is not a setback but you have actually set your bar higher and you will be stronger than before. People who goes to gym to build their muscle need to increase the weight in order to gain more muscle. That is setting his or her bar higher.

Have a great weekend and I will be off from my mobile phone awhile because today is my precious family time.

See you next time. Keep steeming, don't give up.

Love, Jade💕

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He sure is a strong boy and so are you.

There are things that happens in our life that holds us back and in process to that fear consumes us while despite all the things that you all went through you are smiling that is the meaning of living life.

Keep on going and enjoy life to the fullest.

Thank you for your meaningful words @rehan12.

Need to keep smiling as there are more to life for us to explore and enjoy.

You too, stay awesome! :)

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@iamjadeline saya juga ikut memperhatikan keluarga anda dalam kondisi yang demikian,saya tahu bahwa anda adalah ibu terbaik baik bagi si adek manis ini,yang selalu memberikan semangat hidup untuknya,dan saya yakin anda sangat percaya bahwa setiap cobaan dan tantangan kehidupan itu adalah bumbu kehidupan yang mesti di jawab dengan senyuman,karena setiap kesulitan pasti ada kemudahan dan setiap cobaan pasti di dalamnya terkandung keberkahan,saya doakan dalam keluarga @iamjadeline selalu allah limpahkan kasih sayang dan lindungannya,salam sukses luar biasa dari @itikna09

Terima kasih kerana singgah di postingan saya. Saya tidak pasti sama ada Bahasa Malaysia sama dengan Bahasa kami.

Sememangnya kehidupan ada banyak cabaran tetapi cabaran juga akan menjadikan kita lebih matang and lebih kuat.

Thank you for your input here. And keep sharing. Keep improving. Keep learning. And I will see you around. :)

thank you for your support and enthusiasm @iamjadeline, hope you are healthy and happy with your family

So amazing that your experience with your son has led you to give this advice. I'm sure it's been quite a journey. He really is so adorable.

It has been a journey and we have all emerged stronger than ever.

Thank you @jusipassetti. It is so good to see you here. 🙂

Thank you for sharing this! I didn't know what CDH was until now, so I did some research. Wow, from what I've read, you've been through so much and your son is so strong! Congratulations on four years! Your son is precious and inspirational!

Yeah. We didn't know what was CDH too until our son had it. Three words that changed our life entirely. He is such a blessing to us and we will never want to trade anything else.

Thank you @freedomtowrite for even taking time to check what is CDH.

🙂

Hugs to you and Jansen!

Thank you @heartscally. You have a great weekend and great teaching time there. :)

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Hi @iamjadeline!

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