Fetal Left Heart Syndrome

vgholdingsllc (65)in #life • 5 years ago (edited)

For the past week I have been up at the hospital with my first born Grandson. He was born with a condition known as Left heart syndrome. It is when the Left side of the heart doesn't fully develop and needs to be built to pump the blood. Here is what a normal heart looks like compared to a heart with the syndrome.

His was slightly different than this example but you get the idea. At 4 days old he went in for his first open heart surgery. Since that time he has improved much faster than the doctors expected. His heart is beating on it's own now. Still getting help from a breathing machine, but that will be removed soon.

He will remain in NICU for another month while he recovers. Then at 3 months old, will have another open heart surgery to upgrade his parts.

I can't say enough good stuff about the Mott Children's hospital and Ronald McDonald house. They have bent over backwards to make sure he was in the best possible care and that the parents could stay with him during this process. All of my charitable donations will now be switched over to their program.

For now we are taking things one day at a time. Thanks to all of you for the support and kind words. Hopefully the worst is behind us now. Time to get this kid stacking some shiny!!!

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5 years ago in #life by vgholdingsllc (65)

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thekittygirl (68) 5 years ago

My brother's daughter gave birth to a baby with Hypoplastic Left heart Syndrome. She's been through several surgeries and was doing okay until problems became complicated last last year, and she just had a heart transplant but is doing okay, all-in-all. Not all children with the syndrome need a transplant, and I hope your grandson is one of them! I hope he does well and brings your family much joy! Welcome to grandparenthood! 😊

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vgholdingsllc (65) 5 years ago

Sorry to hear that. How old was she when she needed the transplant? This was his first surgery and will be having another in 3 months. So far he has done better than they expected. I hope it stays that way. It sucks not being able to help the little guy.

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thekittygirl (68) 5 years ago

It was just past her third birthday when she began having problems getting enough oxygen to her lungs. They found that a stent which had been inserted into one of her arteries had become clogged, so they replaced it with a larger stent and did another small bypass to help improve blood flow. It didn't help much, though, and they realized she needed the transplant.They had to get her evaluated by a transplant specialist, then wait for a donor heart. She had the surgery just two weeks ago today, and all is going well. If you are interested, I could DM you a link on Discord to her page on FB, where they post updates, and you can scroll back to the beginning to read ALL the story from Day One — and if you don't have that much time or interest, that's cool, too. I'll keep your grandson in my thoughts, and please keep us updated!

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vgholdingsllc (65) 5 years ago

That would be great if you could send that over. I don't have a FB page but my daughter does and I'm sure she would love to read about it. Happy to her she is doing better and I'll keep her and your family in my thoughts.

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