** Life with a Crohn's disease nr.1 - how it all started **

Hey guys, It was about 3 weeks and I didn’t post anything. It was a little bit of a hard time for me. i really didn’t want to write about this but my husband encourages me to do that.
So I will share a story about me. I was always a healthy person and I didn't think something bad can happen to me. But jeah, bad things come when you least expecting.

For about 7 years ago, I started to feel some funny feeling in my stomach. I didn't give much attention on that, but with time It was getting hard for me to eat normal food without throwing it out.
I’d still eat but just very light food, like rice and pasta without throwing out or going to the bathroom.
I thought, it's some virus or something so I wasn't concerned at all. But with time, this changed to. I started losing my weight. In 3 weeks I lost 5kg,so I decided it’s time to go to the doctor.
At the time, I was still living in Slovenia, Ljubljana because I was studying there but my doctor was in my hometown. She didn't take my blood or anything, she just said it’s some virus and maybe I will lose some more weight. She gave me pills which are stopping diarrhea and vomiting and she send me home.
I wasn't thrilled about that, but hey she is a doctor and she’s know what she’s doing. So I had back to Ljubljana because I missed some lecture.
Unfortunately, it hasn't got better. I took my pills every day but I was still getting weaker and weaker and I lost another 5 kg. I couldn't eat or drink because everything ended in toilet. It wasn't getting better but my doctor said it is just some virus and who am I to question her words.
I spent most of my time in the apartment, I didn't go out because I simply didn't have the energy to socialize. But then my stomach began to hurt differently than usual. The pain was severe, the cramps lasted a minute or two and then stopped so unexpectedly as they appeared.

Somewhere at this time I met my future husband. He was very kind and very friendly to me, and because he knew some doctors in Ljubljana, he arranged for me to be examined by a gastroenterologist.
They made a lot of test, MRI, CT, colonoscopy, gastroscopy and so one and one...In one week they come back with the diagnosis. Crohn's disease. I was in shock. How the hell is that possible. My younger brother have the same disease so it's almost impossible for me to have that too. He got sick when he was just 5 years old and I was 21 years old when I got it.
His condition is more serious, but I will not write about it.
They said this disease came from too much stress, alcohol, unhealthy food and much more. In the begging of my disease I experience a lot of stress but this is not important now.
We started treatment. The first tablets did not help, others also not and so on.
Then the doctor decided to start treatment with a biological medicine called Humira.
Fortunately, I began to feel better, so with my husband we decided to move to Austria to start a life together.
I was very happy to live in another country, have a new job, living with my boyfriend and our dog and life was perfect again.
But then reality catches me again. I started getting wounds on my body.
The entire hands, palms, and legs were covered with wounds. I needed to quit my job because I couldn't work like that.
My doctor was still in Ljubljana so I returned there.
He gave me a cream and some new tablets but we still continue my treatment with Humira. A week later, I noticed my hair started to fall out. My entire head was covered with wounds.
And then I remembered, that side effect from Humira are symptoms like that.
I cut my hair so it would not be so obvious and started to wear hats and scarves. I immediately stopped using the medicine.

Cream, which I received from my doctor, didn't help, so I started to look for some other thing. I found hemp cream and I began to use it.
Two weeks later my skin started to heal. I was insanely happy. I can use my hands again without pain.
But my hair had still falling out and the wounds on the head didn't heals.
My husband was always around me with his good mood and his positivity. He had a idea how can my head heal faster. We will shave my head. ( he shaved his head too, so I wouldn't feel so bad)
Since I didn't know what more we can do, I decided we should do it.
Of course this is not a small step. I'm gonna lose my hair. All my hair.
My husband took the shaving machine and he started to shave.

I tried to keep my tears but I failed. I was crying like a little baby. My hair! They are gone!
My husband, family and my friends, they were sooo supportive.
I don't know, how I would manage without their help.
Of course there were some people with bad comments on my new look but I had much more important things to do.

I decided to stop taking all my pills and try more of a naturals things. I started to eat healthier, didn't drink alcohol anymore, I meditated, doing yoga and I find a new job.
I was good again, without the pills.
I find doctor here in Graz and he said that my disease is in remission.This is the state when the disease is at rest. He still recommended some new pills just to be sure. But I didn't want to because I was still scared what have happened with my last treatment. I was living healthier life and the disease was resting for about 5 years.

At this time, a lot of things happened, so I stopped paying attention to this disease because some time later I was having my first epi seizure and this was priority now. This two diseases have some things in common. Too much stress will awake both of them.
And so it was. About 3 week ago I started to have headaches, my stomach hurt and I know it this is not looking good. I went to the doctor and she took my blood. She immediately send me to hospital. I was dehydrated, with no energy, with pain in my stomach and a strong headache.I stayed in the hospital for a week and they make a lot of different tests.

They send me home and three days later I came back that we did some new tests.
It was confirmed. My Crohn was active again and it was worse than before.
We will make some new test this month and then we will decide which medicine should we try. In this time I’m taking CBD oil and I'm getting little better but still, the problem is, I have ulcers on the colon and it's spreading further on. I know, I need to try some new medicine but I'm scared like hell because I remember how my last treatment has ended.
But yeah on the other side my life is still awesome. Great husband and friends, my lovely dog, job that I like and the winter is finally coming 🙂

And for the end;
I still don't know how I can be that person who deserves a husband like is mine. He is always besides me and he supports me no matter what. You are my world !

Thanks guys for reading this and if you have any questions just ask. 😉
with love, @tinabrezpike ❤️